MS Patient Registry

The MENACTRIMS MS Patient Registry provides a backbone for research in MS by the society while conducting large scale and small scale consensuses to provided the latest and most up to date statistics.

Objective

To study the epidemiology of demyelinating disorders in the Middle East and North Africa (MENA) Region.

Primary and Secondary Endpoints

To measure the prevalence and incidence rates of MS in MENA region
To study the natural history of MS across various countries in the MENA region
To study the clinical demographics, clinical characteristics and MRI features of MS patients

Members of the Registry

Country	Neurologist	Centers	Patients Enrolled
Kuwait	Raed Alroughani	Amiri Hospital	2914
Tunisia	Riadh Gouider	Razi Hospital	913
Egypt	Fathi Shereen	Maadi MS Center	10
Lebanon	Samia Khoury	American University of Beirut Medical Center	1513
United Arab Emirates	Jihad Inshasi	Rashid Hospital	249
Iran	Vahid Shaygannejad	Al-Zahra Hospital	3090
Iran	Seyed Aldin Sajedi	Golestan	875
Saudi Arabia	Talal Al-Harbi	King Fahad Specialist Hospital	220
Saudi Arabia	Mona Alkhawajah	King Faisal Specialist & Research Center	86
Saudi Arabia	Salman Ajarallah	King Saud University Medical City	Recently Joined
Oman	Abdullah Al-Asmi	Sultan Qaboos University Hospital	290
Egypt	Magd Zakaria	Ain Shams	3557
United Arab Emirates	Bassem Yamout	Harley Medical Street Centre	246
Oman	Jaber Alkhaboori	Royal Hospital	39
Egypt	Fathi Shereen	Maadi MS Center	10
Iran	Abdorreza Naser Moghadsi	Tehran University of Medical Science	436

Patient Enrollments

Total Patients Enrolled = 15387 patients

Disease Course

Disease Course	N	Percent %
Relapsing-Remitting MS	10530	81.60%
Secondary Progressive MS	905	7.00%
Primary Progressive MS	288	2.30%
Progressive Relapsing	146	1.10%
Clinically Isolated Syndrome	778	6.0%
NMOSD	263	2.0%

Disease Duration

Years	Count	Percent %
0-4	1758	12.30%
5-9	3147	22.00%
10-14	4201	29.30%
15-19	2768	19.30%
>20	2446	17.10%

Age at Onset

Age Group	Count	Percent %
<20	2596	18.10%
20-29	6174	43.10%
30-39	3827	26.70%
40-49	1360	9.50%
50-59	315	2.20%
60-69	41	0.36%
70-79	5	0.03%
>=80	2	0.01%

Age at Diagnosis

Age Group	Count	Percent %
<20	1313	10.80%
20-29	4769	39.30%
30-39	3830	31.70%
40-49	1623	13.40%
50-59	474	3.90%
60-69	90	0.74%
70-79	9	0.07%
>=80	11	0.09%

Distribution of Sex

Sex	Count	Percent %
Male	4197	29.06%
Female	10246	70.94%

MS Patient Registry

MS Patient Registry