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MS Patient Registry

MS Patient Registry

The MENACTRIMS MS Patient Registry provides a backbone for research in MS by the society while conducting large scale and small scale consensuses to provided the latest and most up to date statistics.

Members of the Registry

Country Neurologist Centers Patients Enrolled
Kuwait Raed Alroughani Amiri Hospital 2592
Tunisia Riadh Gouider Razi Hospital 700
Egypt Fathi Shereen Maadi MS Center 10
Lebanon Samia Khoury American University of Beirut Medical Center 1307
United Arab Emirates Jihad Inshasi Rashid Hospital 249
Iran Vahid Shaygannejad Al-Zahra Hospital 2766
Iran Seyed Aldin Sajedi Golestan 875
Saudi Arabia Talal Al-Harbi King Fahad Specialist Hospital 201
Saudi Arabia Mona Alkhawajah King Faisal Specialist & Research Center 86
Saudi Arabia Eslam Shosha Prince Sultan Military Medical Center 0
Oman Abdullah Al-Asmi Sultan Qaboos University Hospital 258
Egypt Magd Zakaria Ain Shams 2788
United Arab Emirates Bassem Yamout Harley Medical Street Centre 103
Oman Jabir Alkhaboori Royal Hospital 39
Egypt Fathi Shereen Maadi MS Center 10

Patient Enrollments

Total Patients Enrolled = 11983 patients

Last Disease Count

Disease Course Count Percent %
RR 183 2.25%
SP 1166 14.32%
PR 230 2.83%
CIS 200 12.27%
NMO-P 4 0.04%
NMO-D 7 0.06%
NA 1348 12.04%

DMT Count in Registry

Current DMT Count Percent %
Aubagio 183 2.25%
Avonex 1166 14.32%
Azathioprine 230 2.83%
Betaferon 999 12.27%
Capaxone 195 2.4%
Extavia 1 0.01%
Gilenya 975 11.98%
IVIG 2 0.02%
Lemtrada 54 0.66%
Methotrexate 48 0.59%
Novantrone 47 0.58%
Rebif 0 0.00%
Tecfidera 369 4.53%
Tysabri 507 6.23%
Other 3354 41.20%

Current Age Distribution

Age Group Count Percent %
<20 120 18.34%
20-29 1513 1.07%
30-39 4022 13.51%
40-49 3274 35.92%
50-59 1613 29.24%
60-69 547 14.41%
70-79 101 4.89%
>=80 7 0.90%
NA 0 0.00%

N= 11197, Mean=40.57, SD=10.94, 5th Percentile=124.00, Media =39.00, 95th Percentile=60.00

Age of Diagnosis

Age Group Count Percent %
<20 1122 10.02%
20-29 4119 36.79%
30-39 3269 29.20%
40-49 1368 12.22%
50-59 404 3.61%
60-69 78 0.70%
70-79 9 0.08%
>=80 8 0.07%
NA 820 7.32%

N= 11197, Mean=30.95, SD=16.10, 5th Percentile=17.00, Media =29.00, 95th Percentile=49.00

Distribution of Sex

Sex Count Percent %
Male 3263 29.14%
Female 7934 70.86%

 

Age of at Onset

Age Group Count Percent %
<20 2053 18.34%
20-29 4906 43.82%
30-39 2891 25.82%
40-49 992 8.86%
50-59 222 1.98%
60-69 24 0.21%
70-79 3 0.03%
>=80 1 0.01%
NA 105 0.94%

N= 11197, Mean=27.72, SD=9.21, 5th Percentile=15.00, Media =26.00, 95th Percentile=45.00