MS Patient Registry

The MENACTRIMS MS Patient Registry provides a backbone for research in MS by the society while conducting large scale and small scale consensuses to provided the latest and most up to date statistics.

Objective

To study the epidemiology of demyelinating disorders in the Middle East and North Africa (MENA) Region.

Primary and Secondary Endpoints

To measure the prevalence and incidence rates of MS in MENA region
To study the natural history of MS across various countries in the MENA region
To study the clinical demographics, clinical characteristics and MRI features of MS patients

Members of the Registry

Country	Neurologist	Centers	Patients Enrolled
Kuwait	Raed Alroughani	Amiri Hospital	2592
Tunisia	Riadh Gouider	Razi Hospital	700
Egypt	Fathi Shereen	Maadi MS Center	10
Lebanon	Samia Khoury	American University of Beirut Medical Center	1307
United Arab Emirates	Jihad Inshasi	Rashid Hospital	249
Iran	Vahid Shaygannejad	Al-Zahra Hospital	2766
Iran	Seyed Aldin Sajedi	Golestan	875
Saudi Arabia	Talal Al-Harbi	King Fahad Specialist Hospital	201
Saudi Arabia	Mona Alkhawajah	King Faisal Specialist & Research Center	86
Saudi Arabia	Eslam Shosha	Prince Sultan Military Medical Center	0
Oman	Abdullah Al-Asmi	Sultan Qaboos University Hospital	258
Egypt	Magd Zakaria	Ain Shams	2788
United Arab Emirates	Bassem Yamout	Harley Medical Street Centre	103
Oman	Jabir Alkhaboori	Royal Hospital	39
Egypt	Fathi Shereen	Maadi MS Center	10

Patient Enrollments

Total Patients Enrolled = 11983 patients

Last Disease Count

Disease Course	Count	Percent %
RR	183	2.25%
SP	1166	14.32%
PR	230	2.83%
CIS	200	12.27%
NMO-P	4	0.04%
NMO-D	7	0.06%
NA	1348	12.04%

DMT Count in Registry

Current DMT	Count	Percent %
Aubagio	183	2.25%
Avonex	1166	14.32%
Azathioprine	230	2.83%
Betaferon	999	12.27%
Capaxone	195	2.4%
Extavia	1	0.01%
Gilenya	975	11.98%
IVIG	2	0.02%
Lemtrada	54	0.66%
Methotrexate	48	0.59%
Novantrone	47	0.58%
Rebif	0	0.00%
Tecfidera	369	4.53%
Tysabri	507	6.23%
Other	3354	41.20%

Current Age Distribution

Age Group	Count	Percent %
<20	120	18.34%
20-29	1513	1.07%
30-39	4022	13.51%
40-49	3274	35.92%
50-59	1613	29.24%
60-69	547	14.41%
70-79	101	4.89%
>=80	7	0.90%
NA	0	0.00%

N= 11197, Mean=40.57, SD=10.94, 5th Percentile=124.00, Media =39.00, 95th Percentile=60.00

Age of Diagnosis

Age Group	Count	Percent %
<20	1122	10.02%
20-29	4119	36.79%
30-39	3269	29.20%
40-49	1368	12.22%
50-59	404	3.61%
60-69	78	0.70%
70-79	9	0.08%
>=80	8	0.07%
NA	820	7.32%

N= 11197, Mean=30.95, SD=16.10, 5th Percentile=17.00, Media =29.00, 95th Percentile=49.00

Distribution of Sex

Sex	Count	Percent %
Male	3263	29.14%
Female	7934	70.86%

Age of at Onset

Age Group	Count	Percent %
<20	2053	18.34%
20-29	4906	43.82%
30-39	2891	25.82%
40-49	992	8.86%
50-59	222	1.98%
60-69	24	0.21%
70-79	3	0.03%
>=80	1	0.01%
NA	105	0.94%

N= 11197, Mean=27.72, SD=9.21, 5th Percentile=15.00, Media =26.00, 95th Percentile=45.00

MS Patient Registry

MS Patient Registry