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MS Patient Registry

MS Patient Registry

The MENACTRIMS MS Patient Registry provides a backbone for research in MS by the society while conducting large scale and small scale consensuses to provided the latest and most up to date statistics.

Members of the Registry

Country Neurologist Centers Patients Enrolled
Kuwait Raed Alroughani Amiri Hospital 2914
Tunisia Riadh Gouider Razi Hospital 913
Egypt Fathi Shereen Maadi MS Center 10
Lebanon Samia Khoury American University of Beirut Medical Center 1513
United Arab Emirates Jihad Inshasi Rashid Hospital 249
Iran Vahid Shaygannejad Al-Zahra Hospital 3090
Iran Seyed Aldin Sajedi Golestan 875
Saudi Arabia Talal Al-Harbi King Fahad Specialist Hospital 220
Saudi Arabia Mona Alkhawajah King Faisal Specialist & Research Center 86
Saudi Arabia Salman Ajarallah King Saud University Medical City Recently Joined
Oman Abdullah Al-Asmi Sultan Qaboos University Hospital 290
Egypt Magd Zakaria Ain Shams 3557
United Arab Emirates Bassem Yamout Harley Medical Street Centre 246
Oman Jaber Alkhaboori Royal Hospital 39
Egypt Fathi Shereen Maadi MS Center 10
Iran Abdorreza Naser Moghadsi Tehran University of Medical Science 436

Patient Enrollments

Total Patients Enrolled = 15387 patients

Disease Course

Disease Course N Percent %
Relapsing-Remitting MS 10530 81.60%
Secondary Progressive MS 905 7.00%
Primary Progressive MS 288 2.30%
Progressive Relapsing 146 1.10%
Clinically Isolated Syndrome 778 6.0%
NMOSD 263 2.0%

Disease Duration

Years Count Percent %
0-4 1758 12.30%
5-9 3147 22.00%
10-14 4201 29.30%
15-19 2768 19.30%
>20 2446 17.10%

Age at Onset

Age Group Count Percent %
<20 2596 18.10%
20-29 6174 43.10%
30-39 3827 26.70%
40-49 1360 9.50%
50-59 315 2.20%
60-69 41 0.36%
70-79 5 0.03%
>=80 2 0.01%

 

Age at Diagnosis

Age Group Count Percent %
<20 1313 10.80%
20-29 4769 39.30%
30-39 3830 31.70%
40-49 1623 13.40%
50-59 474 3.90%
60-69 90 0.74%
70-79 9 0.07%
>=80 11 0.09%

 

Distribution of Sex

Sex Count Percent %
Male 4197 29.06%
Female 10246 70.94%